My name is Parisa and I have the honor of being the parent to two amazing human beings, Mina and Brennan, ages 8 and 12 respectively. Both children were born with LCA and more specifically, the NMNAT1 mutation. As a result, they have been legally and functionally blind since birth. Both children use canes to navigate the world and use Braille as their literacy media. They have some sight in that they can see some colors and shapes and shadows, but due to the degenerative nature of this mutation, their very limited eyesight is diminishing.
Brennan is an alarmingly intelligent and witty boy who loves anything Star Wars, making up jokes on the fly, roller coasters and his family. His sense of humor is unparalleled, and I would say it is one of my absolute favorite things to make him laugh, which he does frequently. He loves to write and can whip up an imaginative story in no time at all. He is a sensitive, loving son who loses his cane at least once daily :)
His sister is also super smart in her own right and loves any and all things Star Wars and Barbies. She is intuitive and empathetic and goes out of her way to make sure everyone is happy. She is organized, sweet and a little mischievous too! She is our resident practical joker. One of my favorite stories is when she hid one of her brother's extremely realistic and large rubber spiders under her grandfather's covers, which he discovered upon pulling the blanket back to get into bed for the night. She is also the one who helps Brennan locate his missing cane daily. (Truth be told, she helps me find my missing keys daily too.)